DOWNS SYNDROME
1.
The authors research the factors that influence the quality of life in individuals with down syndrome. They utilize a retrospective cohort research design through the issuing of questionnaires. Generally, the most significant element that impacts the quality of life to these people is the burden of medical conditions, followed by a lack of friends. They declare that the quality of life is exacerbated when the body functioning of these people deteriorates. Finally, they recommend action steps that can be taken to help these individuals to cope better in life. One method is through educating the service providers, and the other is creating a judgment-free environment.
The corresponding author of the article is Helen Leonard, an associate professor at the University of Western Australia. She is situated in the Centre for Child Health Research in the institution. Her roles in the study were to draft the original article, review and edit it and supervise the whole team of four authors.
The article is significant to the study as it shows the health conditions Down syndrome has on an individual and how it reduces the quality of life.
2.
The Russian authors propose an improvement plan to quality of care, notably through using the psychosocial dimension. They do these by carrying out a systematic review of several peer-reviewed journals. One of the improvement plans they put forward is the bio-psycho-social model. They declare that limited studies have been done to it, albeit the high correlation it has to the quality of life. In addition, they mention factors that damage the quality of life, such as the socioeconomic status, which entails aspects like ethnic density, finance, physical limitations, among others.
Zalika Klemenc-Ketis is the corresponding author of the article and is experienced in the field. She is the assistant professor of family medicine at a prominent university at Maribor. More so, she has published 151 articles related to her field and eight projects.
This article helps develop the paper by highlighting the predisposing factors that, when coupled with the syndrome, lead to devastating impacts on the quality of life. Further, the article shows the action steps that can be taken to help individuals enhance their life.
3.
The article demonstrates the behavioral challenges that young adults and children with Down syndrome face in terms of scope and severity. It also stresses the need to identify the behaviors early as learning and the quality of life can be significantly improved. Another strategy they propose to help in this situation is better equipping healthcare providers, both with knowledge and resources. Several apparent behaviors that occur are mentioned, like language development.
Three professionals authored the article. One of them is Lina M. Patel. Her expertise in this field is attested by her being an associate professor of pediatrics and a clinical assistant professor of pediatrics at the University of Missouri-Kansas City School of Medicine and the University of Kansas School of Medicine, correspondingly. On top of this, she has certifications for Pediatrics and Pediatric Emergency Medicine.
This article was a suitable reference for the paper as it gives detailed information concerning Down Syndrome, such as what it is, its causes, and its pathophysiology.
4.
The article presents a forecast care plan for people with intellectual and developmental disabilities (IDD). An analysis was done in rehabilitation centers to arrive at this topic, and a considerable number of their clients suffering from this condition (IDD) had not prepared for the future. It subsequently made the authors aim to safeguard these people from emotional and physical harm by conducting research that offered insights into the best transition-of care plan. From evidence-based practices, the authors were able to achieve their goals. They noted that the transition plan should incorporate patient safety guidelines, team collaborative communication, and adherence to laid out policies and agency’s missions.
A renowned author of the article is Lysia Forsythe. She is the top-most leader in a strategic healthcare consulting firm. She has an MA and Ph.D. in organizational systems, BS in Speech, and an MSN in nursing administration. More so, she is a licensed registered nurse and has been holding a CNOR certification for over two decades.
The article’s importance to the present paper is that it depicts action plans that can be taken to improve the quality of life to individuals living with Down Syndrome. The apparent solution provided by the article is the encouragement of independence.
5.
This article mentions several dimensions related to IDD. Foremost, it mentions that the number of elderly individuals diagnosed with ID is surging, consequently impacting families and community agencies, as they are required to offer support. To worsen the situation, the article notes that this age-group has limited access to quality health care, myriads of age-related health changes, and severely lack financial resources.
Waldman is affiliated to Stony Brook University as a Distinguished Teaching Professor. Seth Keller is a leader in several institutions like the American Academy of Developmental Medicine and Dentistry, National Task Group on Intellectual Disabilities and Dementia Practices Chair, and the American Academy of Neurology. While Rick Rader is a director of Orange Groove and Morton J. Kent Habilitation Center.
The article demonstrates how conditions such as Down Syndrome lead to damaging effects on the body and a reduction in the quality of life. In addition, the authors discuss several action steps that can reduce the ramifications of IDD.
6.
This book profoundly discusses the characteristics and organ and cellular operations in an individual with Down Syndrome. Some of the book’s topics include the brain’s work, how its functioning impact behavior, and why unruly behavior is not categorized as a willful act.
The book is authored by David Stein, a pediatric psychologist and the creator of New England Neurodevelopment, based in Concord, MA. His specialty is in assessing neurodevelopmental disorders, neuropsychological testing, and behavioral and cognitive-behavioral therapy.
The book perfectly portrays how Down Syndrome affects the quality of life and how individuals with it are deemed burdensome to society.