Rethinking Quality in terms of Persons Living with Disability
Abstract
Persons affected by disabilities go through forms of stigma that affect their lives. This study highlights the used numbers of disabilities in years. It identifies the leading causes of the burden from the disease itself as well as a system that integrates services that will lead to an improvement in the lives of persons living with disabilities. Continental anomalies and major depressions are some of the primary causes of disabilities according to the years lived with a disability measurement. People living with disabilities are diverse from young children who ad birth and development disabilities to adults with acute injuries, physical problems, and sensory disorders linked to difficulty in communication. The healthcare system is challenged in delivering appropriate, effective, and well-coordinated services to people living with disabilities. There is a need for gestating issues of patient safety for both adults and children living with disabilities (https://academic.oup.com/intqhc/article/15/4/287/1792999).
People living with disabilities highly value information. Parents or caretakers of children with disabilities, be it deafness or other chronic conditions, become upset when they get misinformation from health care providers that should be well informed regarding the state of the child. Notably, there seems to be a lack of information concerning rehabilitation needs, social services, as well as when it comes to coping with disability. Many employers do not know how to deal with their workers who are disabled. Additionally, people living with disabilities would prefer their health care providers to be responsible for solving the problem. Still, they would like to be asked about the treatment they would prefer and get to know about the outcome too. Governments are also starting to be seriously involved in advocating for people living with disabilities(https://academic.oup.com/intqhc/article/15/4/287/1792999).
Historically, people living with disabilities have always faced stigma linked to their disability. The stigmatization affects their ability to air their needs and have them taken care of, access to care, and the quality of life of an individual. Even though some cultures accept disabilities differently, the stigma that is linked to specific disabilities remains evident. Leprosy, cerebral palsy and HIV and AIDS are some of the most stigmatized disabilities. In some areas where there is a low standing status for women, if a woman is suffering from any form of disability, they fail to go for medical care until it becomes dangerous. Some communities even believe that people with mental illnesses are responsible for their suffering. There need to be intimate links in both the social services sectors as well as the medical care to get high-quality care for persons living with disabilities. A system that will strictly focus on medical issues will fail to put across the quality needs of disabled people. A model of quality based on medical, vocational, and social services of high quality is proposed that will acknowledge the necessity of care at a great first experience. There are more pervasive access barriers to people with disabilities, including the physical ones. This is because some care providers do not see the need for investing in both equipment and technology that aids in access because of their costs (https://academic.oup.com/intqhc/article/15/4/287/1792999).
Conclusion
Care providers need to work with a delivery system that allows adequate client visit time and an increase in the availability of practitioners that can stand for the communication gaps and information required. When it comes to customer’s experiences, care providers should base the success of their programs on more than the outcome of health. Other results such as social and vocational and the view of the consumers about the experience of care are essential when it comes to the care system of delivery. Persons living with disability service delivery brings about a system that coordinates both social and medical services. The system is required to focus on the client’s views, care process, and access.
References
https://academic.oup.com/intqhc/article/15/4/287/1792999